Diseases Areas:
- Amyloidosis
- Leukemia & Lymphoma: Chronic Lymphocytic Leukemia (CLL), Waldenström’s Macroglobulinemia (WM), Chronic Graft-versus-host Disease (cGVHD)
- Lung Cancer
- Metastatic Castration-Sensitive Prostate Cancer
- Metastatic Castration-Resistant Prostate Cancer
- Non-Metastatic Castration-Resistant Prostate Cancer
- Multiple Myeloma
- Unresectable or metastatic liposarcoma or leiomyosarcoma
- Urothelial/Bladder Cancer
Areas of Interest:
- Education of patients and caregivers
- Family/caregiver support including transportation/lodging challenges associated with treatment, psychotherapy, managing side effects of medications, wellness education, advocacy support
- Innovative efforts to empower patients and their caregivers to manage the disease
- Tools to assist patients and families related to therapy
- Efforts to build skills of professionals and caregivers to improve patient outcomes
- Efforts to address healthcare disparities for marginalized or at-risk groups (outreach and awareness, education to policy makers, stigma and cultural competence initiatives)
- Efforts to address impaired functionality, long absence or giving up work by patient and/or caregiver, and education for broader community around patient support
- Direct patient services or linkage to care; disease screenings
- Outreach to those without access to medical care or poor access
- Advocacy initiatives on access to care to treat individual patient need
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