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      EMEA/Our innovation /Focus areas/Immunology /Psoriasis/Freedom from disease
      Freedom from disease in psoriasis
      Psoriasis affects millions of people worldwide and its symptoms reach far beyond the skin.[1] The disease can have a profound impact on daily life, for instance, through its impact on mental health, as well as on work and relationships.[2]
      Learn more about psoriasis
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      Why do we need to define freedom from disease in psoriasis?
      ‘Freedom from disease’ in psoriasis is the idea of what it means for a person living with psoriasis to feel like themselves again.[3] One might imagine that this could be achieved through simply treating the symptoms, but there are other important factors; defining what freedom from disease in psoriasis means helps us identify these.
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      Why do we need to ensure patients are involved in every step of defining what freedom from disease in psoriasis is? Like many other conditions, people living with psoriasis and the doctors and nurses involved in their care can have different ideas about what successful treatment looks like. A doctor might look and see a reduction in dry and flaky skin, but a patient may still feel a persistent itch. The patient voice is therefore key to any definition about freedom from psoriasis.
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      What does freedom from disease look like in psoriasis?

      In a recent study, a large group of patients, doctors and nurses helped build a consensus about what freedom from disease looks like in psoriasis.[3] They identified five core domains that need to be addressed for freedom from disease to be achieved:

      1. Quality of life and well-being
      2. Treatment
      3. Healthcare team support
      4. Psychosocial elements
      5. Management of clinical symptoms

      These results will help foster better communication between doctors, nurses and their patients and lead to better understanding and improvements in the care of psoriasis.

      Why is this important to people with psoriasis?
      Needs
      A better understanding of the overall needs of people with psoriasis can ensure that individual needs are better met.[2],[4]
      Voice
      Listening to and amplifying the voices of people with psoriasis will further improve standards of care.[4],[5]
      Treatment
      Changing the treatment paradigm will enable all people with psoriasis to benefit from the full potential of new therapies.[2],[4]
      Clinical tools
      New ways of assessing severity and measuring clinical response will facilitate new standards in freedom from disease.[5]
      Learn more about freedom from disease in psoriasis

      Learn more about the consensus statement published in JEADV
      February 6, 2023
      Download the PDF
      Patient organisations associated with this initiative
      APAA.png
      Asociația Pacienților cu Afecțiuni Autoimune (APAA), Romania
      Read more
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      Psoriasispatiënten Nederland (PN), Netherlands
      Read more
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      APIAFCO associazione psoriasici italiani amici della Fondazione Corazza, Italy
      Read more
      Deutscher Psoriasis Bund.png
      Deutscher Psoriasis Bund (DPB), Germany
      Read more

      References

      [1] Janssen. Immunology – Psoriasis. Available at: https://www.janssen.com/emea/our-focus/immunology/psoriasis. Accessed January 2023.
      [2] Michalek IM and Loring B. World Health Organization: Global report on psoriasis. Available at: https://www.who.int/publications/i/item/9789241565189. Accessed January 2023.
      [3] van Ee I, et al. Freedom from disease in psoriasis: a Delphi consensus definition by patients, nurses and physicians. J Eur Acad Dermatol Venereol. 2022:36(3):403–412.
      [4] Grine L, et al. A Belgian consensus on the definition of a treat-to-target outcome set in psoriasis management. J Eur Acad Dermatol Venereol. 2020:34(4):676–684.
      [5] Strober BE, et al. Clinical Goals and Barriers to Effective Psoriasis Care. Dermatol Ther (Heidelb). 2019:9(1):5–18.

      CP-459038
      September 2024